This week we have a fetal MRI scheduled. This will give us a more in depth look at baby B's spine
to see where it splits. An ultrasound showed it was right at the bottom of L4, beginning of L5. Hopefully this will confirm that, or place it lower. (I'm crossing my fingers for lower!) We will also get to see the Chiari malformation in more detail.
A week from today is the BIG appointment. Our day will start at 0730 at Abbott Northwestern and the Perinatology Clinic of MN.  From there we will go to The Mother Baby Center and meet with the NICU staff. We will also get a tour as this is where baby B will be for the first couple of weeks of his life. After that, we will get to meet the neurosurgeon that will be doing the surgery to close the spine. We will meet with a doctor that specializes in sb, a social worker, and a nurse manager that will be our go to person. We will also get another look at baby B as they do a growth ultrasound. I believe our last appointment is scheduled at 1545. I will be wiped after that, but hopefully I will go to sleep having most of my questions answered.
After a lot of "why me" questions to God, I was lead to the Bible to look for comfort. My aunt had sent my a verse that I took great comfort in, and I was looking in up when I came across the story of Hannah and Samuel. It's about a faithful woman who prays to God for a child. She tells God that if he grants her that request, she will give her son to the Lord. God grants her this and she brings Samuel to the temple to serve God all the days of his life. This story brought to mind Abraham, Sarah, and their son. God granted them a child in their old age, but then asked Abraham to sacrifice the child. For Abraham's faithfulness, God spared the child. At this point, my mind went to Mary, mother of God. The holy spirit told her that she was chosen to carry a special child. Many times, over the course of Jesus's life, Mary had to let him go. First when he was a child and went to the temple, and last when he was crucified. My thoughts, besides I'm in the company of some great women, were feelings of honor and blessings. For whatever reason, GOD CHOSE US to be this special child's parents. I don't know why. I'm not as holy, honorable, or faithful as these woman of the Bible. But yet, I am being given a child whom I have prayed for, asked for, and I know that he will live his life for the glory of God. What parent doesn't want that?
There are still moments when I start crying. When I see a child in a wheelchair, my heart sinks. These are not things I want for my child. But I'm trying to focus on the positive. On the silver linings to every cloud.